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How to Join our Community

 

Our members have access to an online forum started in May 2008, providing support and useful advice from other parents/carers/professionals.

In addition you'll have access to a chat room, regular newsletters, downloads, members stories/profiles and much much more.

 

In order to protect our existing members we have established an approval process for all new members. This process is as follows:

 

1. Request membership by clicking the link below.
2. Validate your email address by clicking in the link sent to your email.
3. Moderator assesses request and may contact you for further information.
4. Moderator activate's your account - you will be notified of this by email.

 

To request membership click here

                                                               

 

By signing up to our website you agree to abide by the following Terms & Conditions:

 

Please be aware that we are a community that provides internet support for parents of children with Kleefstra syndrome. Our rules are that any information in the members area, including the forum is confidential. If we find a member has breached that confidentiality we will terminate their membership immediately. All members must understand that we do all we can to ensure members are genuine when they register and will remove them if we find otherwise, but we cannot be held responsible for posts made by any members. By being a closed group and each applicant having to undergo a registration process with each application manually reviewed by an Administrator, we are very unique and different to other special needs websites where members can read all those posts without joining. We try to ensure as much as possible the confidentiality of our posters and posts. When members join, they join with the understanding that they have full responsibility for their own posts and therefore should remain alert and aware of what they are posting. We do not allow members to name persons on the site in a negative manner but allow as expected people to vent without disclosing the individual involved. If you have any questions with regards to this post or our forum rules, please contact the administrator direct or use the "Contact Us" link on the homepage.